Mesothelioma is a rare and aggressive cancer that affects the lining of the lungs, abdomen, or heart. It is typically caused by exposure to asbestos, a mineral that was widely used in construction and manufacturing until the 1970s. Dealing with a mesothelioma diagnosis can be overwhelming, both physically and emotionally, and many patients and their families find it helpful to connect with others who are going through similar experiences. Joining a mesothelioma support group can provide a safe and supportive space to share feelings, ask questions, and receive practical advice.
Here are some mesothelioma support groups that you may find helpful:
The Mesothelioma Applied Research Foundation (MARF)
The Mesothelioma Applied Research Foundation (MARF) is a non-profit organization that is dedicated to funding research for mesothelioma treatment and finding a cure for the disease. In addition to their research efforts, MARF also provides a wide range of resources and support for mesothelioma patients and their families. They offer a phone support line, an online community forum, and a patient and caregiver support group that meets monthly via conference call.
The American Cancer Society (ACS)
The American Cancer Society (ACS) is a nationwide organization that provides support and resources for cancer patients and their families. They offer a variety of services, including counseling, financial assistance, and support groups. The ACS website has a search tool that can help you find a support group in your area, as well as an online community forum where you can connect with others who are dealing with mesothelioma.
CancerCare
CancerCare is a non-profit organization that provides free support services to cancer patients and their families. They offer a range of services, including counseling, support groups, and financial assistance. They have a mesothelioma support group that meets monthly via conference call, as well as an online community forum where you can connect with others who are dealing with mesothelioma.
The Mesothelioma Center
The Mesothelioma Center is a website that provides information and resources for mesothelioma patients and their families. They offer an online community forum where you can connect with others who are dealing with mesothelioma, as well as a patient advocate program that can provide one-on-one support and guidance.
The Asbestos Disease Awareness Organization (ADAO)
The Asbestos Disease Awareness Organization (ADAO) is a non-profit organization that is dedicated to raising awareness about the dangers of asbestos and advocating for a global ban on the mineral. They offer support and resources for mesothelioma patients and their families, including a phone support line, an online community forum, and an annual international conference where patients and experts can connect and share information.
In addition to these national organizations, there may be local support groups in your area that you can join. Your healthcare provider or cancer center may be able to provide you with information about local resources and support groups.
When looking for a support group, it’s important to find one that is a good fit for you. Consider factors such as the format of the group (in-person, online, phone), the frequency of meetings, and the focus of the group (patient-only, caregiver-only, or a mix). It may be helpful to try out a few different groups before settling on one that feels comfortable and supportive.
In conclusion, a mesothelioma diagnosis can be a difficult and isolating experience, but joining a support group can provide a valuable source of emotional and practical support. The organizations listed above are just a few of the many resources that are available to mesothelioma patients and their families. By connecting with others who are going through similar experiences, you can find hope, strength, and a sense of community.
