Mesothelioma is a rare and aggressive form of cancer that affects the mesothelium, the lining that surrounds the organs in the body. Advanced mesothelioma refers to cases where the cancer has spread beyond its initial site of origin and has become more difficult to treat. Clinical trials are research studies that aim to find new ways to prevent, diagnose, and treat diseases such as mesothelioma. If you or a loved one has advanced mesothelioma, participating in a clinical trial may be an option to consider. Here are some steps you can take to find ongoing clinical trials for advanced mesothelioma:
Talk to your doctor: Your doctor is the best resource for information about clinical trials for mesothelioma. They can help you understand the potential benefits and risks of participating in a trial and can refer you to a specialist who can guide you through the process.
Check online databases: There are several online databases that list ongoing clinical trials for mesothelioma. These databases include ClinicalTrials.gov, the National Cancer Institute’s Clinical Trials Search, and the Mesothelioma Applied Research Foundation’s Clinical Trials Finder. These databases allow you to search for trials based on factors such as location, stage of mesothelioma, and type of treatment being studied.
Contact mesothelioma organizations: There are several organizations that focus on mesothelioma research and advocacy. These organizations may have information about ongoing clinical trials and can provide support and resources for patients and their families. Some of these organizations include the Mesothelioma Applied Research Foundation, the Asbestos Disease Awareness Organization, and the International Mesothelioma Program at Brigham and Women’s Hospital.
Consider participating in a registry: Mesothelioma registries collect information about patients with mesothelioma, including their medical history, treatment, and outcomes. By participating in a registry, you may be contacted about clinical trials that are relevant to your condition. Some mesothelioma registries include the National Mesothelioma Virtual Bank and the Mesothelioma Research Foundation of America’s Patient Registry.
Consult with a clinical trials specialist: If you are considering participating in a clinical trial, it is important to consult with a specialist who can provide guidance and support throughout the process. A clinical trials specialist can help you understand the eligibility criteria for different trials, the potential benefits and risks of participating, and any other questions or concerns you may have.
It is important to note that clinical trials may not be suitable for every patient with advanced mesothelioma. Your doctor can help you weigh the potential benefits and risks of participating in a trial and can provide guidance on other treatment options that may be available. Additionally, participating in a clinical trial is a personal decision that should be made in consultation with your healthcare team and loved ones.