Mesothelioma is a rare and aggressive cancer that affects the lining of the lungs, heart, or abdominal cavity. It is caused by exposure to asbestos, a naturally occurring mineral that was widely used in construction and manufacturing until the 1980s. Mesothelioma can be difficult to diagnose and treat, and patients and their families often face a range of physical, emotional, and financial challenges.
Fortunately, there are many online communities and resources available for people affected by mesothelioma. These communities provide support, information, and a sense of connection to others who are going through similar experiences. Here are some of the most popular mesothelioma communities on the web:
Mesothelioma Applied Research Foundation (MARF): The MARF is a non-profit organization that is dedicated to finding a cure for mesothelioma through research, education, and advocacy. The organization offers a range of resources for patients and their families, including a message board, a patient and caregiver support group, and a directory of mesothelioma specialists.
Mesothelioma.net: Mesothelioma.net is a website that provides information about mesothelioma, including its causes, symptoms, diagnosis, and treatment. The site also features a directory of mesothelioma specialists and a list of mesothelioma clinical trials. In addition, Mesothelioma.net offers a free book for patients and their families called “100 Questions & Answers About Mesothelioma.”
Mesothelioma Cancer Alliance: The Mesothelioma Cancer Alliance is a national organization that provides support and resources for people affected by mesothelioma. The organization offers a toll-free hotline, a mesothelioma blog, and a directory of mesothelioma specialists. The Mesothelioma Cancer Alliance also sponsors a scholarship for students who have been affected by mesothelioma.
The Asbestos Disease Awareness Organization (ADAO): The ADAO is a non-profit organization that is dedicated to raising awareness about the dangers of asbestos and advocating for a global ban on asbestos mining, manufacturing, and use. The organization offers a range of resources for patients and their families, including a support group, a blog, and a directory of mesothelioma specialists.
The American Cancer Society (ACS): The ACS is a national organization that provides information and support to people affected by cancer, including mesothelioma. The ACS offers a toll-free hotline, a website with information about mesothelioma, and a range of resources for patients and their families.
Inspire: Inspire is an online community for people affected by a range of health conditions, including mesothelioma. The community offers a range of resources, including message boards, support groups, and a directory of mesothelioma specialists.
CancerCare: CancerCare is a national organization that provides free support services, including counseling, support groups, and educational programs, to people affected by cancer, including mesothelioma. The organization offers a toll-free hotline and a range of online resources.
The Lung Cancer Alliance: The Lung Cancer Alliance is a national organization that provides support and resources for people affected by lung cancer, including mesothelioma. The organization offers a toll-free hotline, a website with information about mesothelioma, and a range of resources for patients and their families.
The National Cancer Institute (NCI): The NCI is a government agency that is part of the National Institutes of Health. The agency provides information about cancer, including mesothelioma, as well as a range of resources for patients and their families.
In addition to these specific communities, there are also many general cancer support communities on the web, such as Cancer Support Community and the American Cancer Society’s Cancer Survivors Network. These communities can provide valuable support and resources for people affected by mesothelioma, as well as other types of cancer.
When joining an online community, it is important to make sure that the information provided is reliable and accurate. Look for communities that are run by reputable organizations, such as non-profit organizations or government agencies. You can also ask your doctor or healthcare provider for recommendations.
In conclusion, mesothelioma can be a challenging and isolating experience, but there are many online communities and resources available to help. These communities can provide support, information, and a sense of connection to others who are going through similar experiences. By joining an online community, you can find the resources and support you need to cope with mesothelioma and live a fulfilling life.
